Saturday, April 30, 2005
Oooooooh, I'm back. I still don't know my password so I got here by a most circuitous route. How strange.
Things are rough here. I'm very worried about K and what we are actually dealing with IRT his bowel disorder. I'm thinking it is neuronal intestinal dysplasia or slow transit constipation and that's not something we can fix probably, we can only treat symptoms. It's very hard to wrap my head around the idea that he is a chronically ill child with no cure in sight. I had thought the MACE would have fixed it and it hasn't, it's just shown up more and more problems with his motility.
This sucks. I hate it.
Things are rough here. I'm very worried about K and what we are actually dealing with IRT his bowel disorder. I'm thinking it is neuronal intestinal dysplasia or slow transit constipation and that's not something we can fix probably, we can only treat symptoms. It's very hard to wrap my head around the idea that he is a chronically ill child with no cure in sight. I had thought the MACE would have fixed it and it hasn't, it's just shown up more and more problems with his motility.
This sucks. I hate it.
